Growing Up With ‘Butterfly Skin': Meet the Woman With Skin as Fragile as a Butterfly’s Wings
Real Fix
2023-11-18
Views 749
Credit: SWNS / Shirvani Naran
Meet the woman with skin as fragile as a butterfly's wings - which blisters at the slightest touch and means she spends four hours a DAY bathing and dressing her wounds.
Shirvani Naran, 35, was born with Recessive Dystrophic Epidermolysis Bullosa - an extremely rare and incurable skin condition - which leaves her with blisters and third-degree burn-like injuries at even the smallest contact.
She is unable to do daily tasks such as picking up items, opening bottles, chopping vegetables or even turning on a tap without breaking out in painful lesions and is forced to wrap herself up in bandages like a mummy on a daily basis.
The disease causes skin to blister both externally and internally and has even caused the mum-of-three’s eyes, inner ears, and throat to react.
Each evening, Shirvani spends four hours bathing and dressing her wounds from head-to-toe to keep her agonising condition under control.
Meet the woman with skin as fragile as a butterfly's wings - which blisters at the slightest touch and means she spends four hours a DAY bathing and dressing her wounds.
Shirvani Naran, 35, was born with Recessive Dystrophic Epidermolysis Bullosa - an extremely rare and incurable skin condition - which leaves her with blisters and third-degree burn-like injuries at even the smallest contact.
She is unable to do daily tasks such as picking up items, opening bottles, chopping vegetables or even turning on a tap without breaking out in painful lesions and is forced to wrap herself up in bandages like a mummy on a daily basis.
The disease causes skin to blister both externally and internally and has even caused the mum-of-three’s eyes, inner ears, and throat to react.
Each evening, Shirvani spends four hours bathing and dressing her wounds from head-to-toe to keep her agonising condition under control.
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